When I look at life, I have realized that things may seem the same but they're not. I've hidden in my shell a lot but then come out of it. I haven't wanted to or meant to lead anybody astray or down the garden path. I've had my fair share of ups and downs.
I AM A SURVIVOR
Starting from humble beginnings, not only was I born with spina bifida, I also have hydrocephalus as well. (Water is the central piece to my whole life because hydrocephalus means water of the brain). Without a shunt, I would not be here today to tell the tale. My first shunt (or neural tube) was inserted in my brain and it uncoiled until it could wrap around my belly button, in other words, it grew with me. When I stopped growing, it did so, too.
I AM A SURVIVOR
I am lucky in the fact that many people I know have had many shunt operations (shunts taken out, new ones' put in, shunts put behind another one etc etc). I am fortunate that I have one on one side that no longer works but has been apart of me my whole life. I started getting headaches at 26 and after passing out, Mum found me on my bed unresponsive, unbeknownst to everyone around me, my first shunt had seized to work anymore. I went straight into hospital to have brain surgery. (Anyone who tells you: 'It's not brain surgery !', tell them 'I will be the judge of that'.
I AM A SURVIVOR.
I have done so many things with my life and so much more to accomplish, not because of my disability but despite it.
I AM A SURVIVOR.
It's been a loooong process of soul searching, but I have now realized that not everyone is meant to stay in my life forever. It's been painful, but I have let go long after 'friends' have let go. When I thought people would be a part of my life forever, I realized 'forever' is a loooong time. They left my life and I have finally come to grips with that, I'm fine with that. I survived.
I AM A SURVIVOR.
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